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• Wournos - Oct 16 2007 | medicine, health

  Rare Disease Online Resource

  "About Us:

  Rare Disease, Orphan Disease, Rare Disorder or Rare illness
  There are many ways to name them, and there are just as many different individual diseases – over 5,000 and growing. In Europe, a disease is declared rare or an orphan disease if it affects 1 in every 2,000 persons or less, and in the USA, 1 in every 1,500.

  Problem 1
  Individually, rare diseases or orphan diseases have a small voice because of the nature of the diseases – they are rare.

  Problem 2
  Complicating the problem even more, is the fact that very few physicians know how to properly diagnose and treat any given rare disease because they are so uncommon.

  Problem 3
  Not only do rare diseases not obtain a lot of attention and have few physicians who understand them – only a small number of rare diseases have treatment options."

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• Reckon